I was first diagnosed with Arteriovenous Malformation, AVM, at the age of 9 and received radiation through Massachusetts General. We watched the area. We did another round of radiation at the age of 15 since there was some swelling. Right after my 16th birthday, I started having grand mal seizures and we found out the AVM had doubled in size and was restricting blood flow. The options were to either save my life and take it out, or risk dying within 24 hours. I did the surgery. Since then, I have had follow up surgeries, a feeding tube placement, several seizures, trouble with blood counts, shots, pokes, hospital stays, and much more.
I am now 22 and still fighting for my life. My treatment plan has changed several times in the span of 5 years and my body never reacts the way the doctors expect. I have had to overcome a lot of obstacles and now may be starting a whole new battle with lymphoma. We are carefully watching for the next 6 months and will go from there treatment wise. It has been really hard facing all of this at such a young age. I struggle with many things people my age don’t.