I was first diagnosed in June of 2013, at the age of 29, with Ewing’s Sarcoma of my left knee/femur with metastasis to lymph nodes in my left groin. I did 11 months of intense chemo followed by surgery to replace my left tibia, femur, and knee. I was cancer-free for 2 and a half years and relapsed to my lungs when I was 7 months pregnant with my youngest child. I delivered him at 36 weeks and started chemo yet again. This time I did 9 months of chemo followed by lung radiation. After lung radiation, I developed severe pulmonary pneumonitis and almost died. I made it through and was again cancer-free.
At my 12-month scans, I found out I had Ewing’s for the third time. Again back in my lungs and also in the hilar lymph nodes. I started chemo again in August 2018. In December 2018 I had lung surgery and had 2 wedge resections. From January to April of 2019 I did more chemo. In April I decided my body had had enough chemo. It was beating me down to where I could not take care of my kids or enjoy any of my life. In June 2019 I found out after a fall I broke part of my leg prosthetic. I just found out surgery isn’t an option and it’s not repairable. For now, we watch my scans and see what my disease does. The hardest thing for me to come to terms with is the fact that I will probably not get to see my kids reach adulthood, I won’t be there for their monumental moments. My biggest fear is wondering if my youngest baby (age 2) will remember me.